RA is an autoimmune disease that affects 2 million people in the U.S., most of them women.
Kelly Young founded the Rheumatoid Patient Foundation, the non-profit behind the first Rheumatoid Awareness Day. The hope is to get people who are feeling R.A. symptoms to see a doctor now – and to get people with money to give some of it to R.A. research.
“The levels of research funding, federally, in the United States for this disease are much lower per patient than they are for comparable diseases,” said Young.
“The Rheumatoid Patient Foundation was formed in 2011 with advice and input of numerous RA patients and leaders of other related non-profits,” explains Young.
“RPF was created in response to an outpouring of requests from the Rheumatoid patient community. The founding Board of Directors was a group of people living with the disease, “ she said.
The Rheumatoid Patient Foundation’s Mission: RPF is dedicated to improving the lives of people with Rheumatoid disease. It’s Vision: We envision a world where no one suffers from rheumatoid disease.
Meeting these goals will come from its core values of Awareness, Support, Advocacy, and Cure, and its Strategies of
1. Providing educational resources about RA.
2. Offering opportunities for patients and others to increase RA awareness
3. Participating in patient-centered research on RA.
The priorities for RPF include:
1. To intensify awareness of RA as a systemic disease. Change ICD label to Rheumatoid Disease.
Increase efforts to discover causes of RA.
2. To improve health care for RA patients. Incorporate extra-articular disease treatment
3. To include patient-centered outcome measures in research and clinical settings.
We’ll be looking more closely at Rheumatoid Arthritis in an upcoming blog.
Meanwhile, no matter what type of arthritis you suffer from, one of the life management issues you probably face is trying to write when the joints of your fingers and hands experience discomfort and even pain by trying to grip a pen.
The ergonomic pen, the UGLee Pen, has been scientifically designed to actually relax your hand during writing. It’s kind of like a case of “leave the gripping to us.”